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Metalworking (rec.crafts.metalworking) Discuss various aspects of working with metal, such as machining, welding, metal joining, screwing, casting, hardening/tempering, blacksmithing/forging, spinning and hammer work, sheet metal work. |
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#1
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Update on Mary
I have friends here that care, other readers please ignore.
We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. It's rare, 8 people per million rare. Nobody knows more about it than Mayo. It is a very difficult disease to treat because it has many dimensions and manifestations, and interactions with other issues like cardiac, gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, sudden death by heart failure is more probable than for a person without such damage. We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. It's a bad idea to **** my Mary off, but she does appreciate a good joke. We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. An initial chemotherapy regimen has been defined, which Mary will begin immedately. Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs edema, vs side effects from the chemo. Mary's sense of humor is undiminished. The cardiologist of late appointment today, upon first encounter with Mary, noted discoloration of her nose. What up with that? I paraphrase, the cardiologist was Indian, not Afro. Anyway, Mar noted that a fellow patient in an aside in the waiting room said "I sure hope you're having a better day than I am." The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself (the self-centered asshole!) I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. Mary had cried a bit for him so her nose was red. Why do I love her so? We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. |
#2
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Update on Mary
Don Foreman wrote:
I have friends here that care, other readers please ignore. Hang in there, Don. Please convey our good wishes to Mary as well. --Winston |
#3
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Update on Mary
On Thu, 04 Nov 2010 01:29:33 -0500, Don Foreman
wrote: I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. It's rare, 8 people per million rare. Nobody knows more about it than Mayo. It is a very difficult disease to treat because it has many dimensions and manifestations, and interactions with other issues like cardiac, gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, sudden death by heart failure is more probable than for a person without such damage. We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. It's a bad idea to **** my Mary off, but she does appreciate a good joke. We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. An initial chemotherapy regimen has been defined, which Mary will begin immedately. Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs edema, vs side effects from the chemo. Mary's sense of humor is undiminished. The cardiologist of late appointment today, upon first encounter with Mary, noted discoloration of her nose. What up with that? I paraphrase, the cardiologist was Indian, not Afro. Anyway, Mar noted that a fellow patient in an aside in the waiting room said "I sure hope you're having a better day than I am." The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself (the self-centered asshole!) I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. Mary had cried a bit for him so her nose was red. Why do I love her so? We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. My prayers are with Mary..and with you. Gunner -- "Confiscating wealth from those who have earned it, inherited it, or got lucky is never going to help 'the poor.' Poverty isn't caused by some people having more money than others, just as obesity isn't caused by McDonald's serving super-sized orders of French fries Poverty, like obesity, is caused by the life choices that dictate results." - John Tucci, |
#4
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Update on Mary
Don, Thanks for the update. Please tell Mary our prayers are with her.
I've also spent serious time at Mayo for my son. No question you are at the best in the world. I also spent a LOT of time at the hospital in Coon Rapids for the same problem. That may be your local hosipital. I hope to not return there. Karl |
#5
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Update on Mary
On Thu, 04 Nov 2010 01:29:33 -0500, Don Foreman
wrote: snip Why do I love her so? We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. Don, I'll pray for the both of you. Pete Keillor |
#6
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Update on Mary
My best wishes to you Don.
i |
#7
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Update on Mary
On Thu, 04 Nov 2010 01:29:33 -0500, Don Foreman
wrote: I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. ****, ****, ****. Condolences to both of you, Don. Mary's sense of humor is undiminished. Good. Have you called Drs. House and/or Wilson out of retirement yet? We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. Suckage. -- Experience is a good teacher, but she send in terrific bills. -- Minna Thomas Antrim |
#8
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Update on Mary
*
Cancer is an obscenity, I am sorry. |
#9
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Update on Mary
On Nov 4, 1:29*am, Don Foreman wrote:
I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. * We now have a course of action and treatment. * Diagnosis is 99% sure that Mary's disease is primary *light-chain amyloidosis involving her heart and gut. *The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. * This is an incurable disease, a form of cancer. *It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. * It's *rare, *8 people per million rare. * Nobody knows more about it than Mayo. *It is a very difficult disease to treat because it has many dimensions and manifestations, *and interactions with other issues like cardiac, *gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, *sudden death by heart failure *is more probable than for a person without such damage. * We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. *We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. *It's a bad idea to **** my Mary off, but she does appreciate a good joke. * We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. * An initial chemotherapy regimen has been defined, which Mary will begin immedately. * Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs *edema, vs side effects from the chemo. * Mary's sense of humor is undiminished. * The cardiologist of late appointment today, *upon first encounter with Mary, noted discoloration of her nose. *What *up with that? *I paraphrase, the cardiologist was Indian, not Afro. * Anyway, *Mar noted that a fellow patient in an aside in the waiting room said *"I sure hope you're having a better day than I am." * *The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself *(the self-centered asshole!) *I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. *Mary had cried a bit for him so her nose was red. * Why do I love her so? * We noted this evening that Rochester is 90 minutes bed-to-bed. *That's an easy commute. *We'll probably be doing that with some frequency. * Remember the Serenity Prayer. |
#10
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Update on Mary
"Don Foreman" wrote in message ... I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. It's rare, 8 people per million rare. Nobody knows more about it than Mayo. It is a very difficult disease to treat because it has many dimensions and manifestations, and interactions with other issues like cardiac, gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, sudden death by heart failure is more probable than for a person without such damage. We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. It's a bad idea to **** my Mary off, but she does appreciate a good joke. We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. An initial chemotherapy regimen has been defined, which Mary will begin immedately. Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs edema, vs side effects from the chemo. Mary's sense of humor is undiminished. The cardiologist of late appointment today, upon first encounter with Mary, noted discoloration of her nose. What up with that? I paraphrase, the cardiologist was Indian, not Afro. Anyway, Mar noted that a fellow patient in an aside in the waiting room said "I sure hope you're having a better day than I am." The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself (the self-centered asshole!) I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. Mary had cried a bit for him so her nose was red. Why do I love her so? We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. Don, you've spent enough days under the bus to know that it's the days you DON'T spend under the bus that make all the difference. And even on the bad days, there's tenderness and love. My best to you and Mary. It is refreshing to see two people today who love each other as much as you two do. Steve Heart surgery pending? Read up and prepare. Learn how to care for a friend. http://cabgbypasssurgery.com |
#11
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Update on Mary
On 11/4/2010 1:29 AM, Don Foreman wrote:
I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. It's rare, 8 people per million rare. Nobody knows more about it than Mayo. It is a very difficult disease to treat because it has many dimensions and manifestations, and interactions with other issues like cardiac, gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, sudden death by heart failure is more probable than for a person without such damage. We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. It's a bad idea to **** my Mary off, but she does appreciate a good joke. We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. An initial chemotherapy regimen has been defined, which Mary will begin immedately. Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs edema, vs side effects from the chemo. Mary's sense of humor is undiminished. The cardiologist of late appointment today, upon first encounter with Mary, noted discoloration of her nose. What up with that? I paraphrase, the cardiologist was Indian, not Afro. Anyway, Mar noted that a fellow patient in an aside in the waiting room said "I sure hope you're having a better day than I am." The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself (the self-centered asshole!) I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. Mary had cried a bit for him so her nose was red. Why do I love her so? We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. My prayers are with you both. May God give you strength and continued good humor. Rex -- I can see November from my front porch |
#12
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Update on Mary
Don Foreman wrote:
I have friends here that care, other readers please ignore. She (and you) will be in my prayers, Karl. Give her my respects too. -- Richard Lamb email me: web site: www.home.earthlink.net/~cavelamb |
#13
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Update on Mary
On Nov 4, 2:29*am, Don Foreman wrote:
I have friends here that care, other readers please ignore. You do have friends that care. If you can think of anything we can do, let up know. Dan |
#14
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Update on Mary
Don Foreman wrote: I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. It's rare, 8 people per million rare. Nobody knows more about it than Mayo. It is a very difficult disease to treat because it has many dimensions and manifestations, and interactions with other issues like cardiac, gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, sudden death by heart failure is more probable than for a person without such damage. We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. It's a bad idea to **** my Mary off, but she does appreciate a good joke. We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. An initial chemotherapy regimen has been defined, which Mary will begin immedately. Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs edema, vs side effects from the chemo. Mary's sense of humor is undiminished. The cardiologist of late appointment today, upon first encounter with Mary, noted discoloration of her nose. What up with that? I paraphrase, the cardiologist was Indian, not Afro. Anyway, Mar noted that a fellow patient in an aside in the waiting room said "I sure hope you're having a better day than I am." The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself (the self-centered asshole!) I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. Mary had cried a bit for him so her nose was red. Why do I love her so? We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. Best wishes for successful treatment and management of the condition. |
#15
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Update on Mary
On Thu, 04 Nov 2010 01:29:33 -0500, Don Foreman
wrote: We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. Don, stay strong for both of you. Best of luck. I don't think you can do more than you have. -- sp |
#16
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Update on Mary
On Nov 4, 2:29*am, Don Foreman wrote:
I have friends here that care Indeed you do, and I count myself among them, politics be damned. You also both have excellent attitudes, and that can make a world of difference in quality of life - ant that's what it's all about, isn't it? Hang in there. RS |
#17
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Update on Mary
On 11/03/2010 11:29 PM, Don Foreman wrote:
I have friends here that care, other readers please ignore. Best of luck - cancer's a bitch. We lost my dad two years ago, and it took a year just for my mom to start recovering. There is life after a loved-one's death, even if things look pretty damn dark when it happens. -- Tim Wescott Wescott Design Services http://www.wescottdesign.com Do you need to implement control loops in software? "Applied Control Theory for Embedded Systems" was written for you. See details at http://www.wescottdesign.com/actfes/actfes.html |
#18
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Update on Mary
On 11/04/2010 01:29 AM, Don Foreman wrote:
This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. Wow, bad news! So sorry to hear it! Well, of course, with really rare diseases, nobody really knows the prognosis all that well, so it might not be as bad as it seems. You (both) could get lucky! Jon |
#19
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Update on Mary
On Thu, 04 Nov 2010 01:29:33 -0500, Don Foreman
wrote: I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. snip Best wishes for a speedy recovery. If you are are at Mayo, you are doing everything you can. -- Unka George (George McDuffee) ............................... The past is a foreign country; they do things differently there. L. P. Hartley (1895-1972), British author. The Go-Between, Prologue (1953). |
#20
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Update on Mary
Don Foreman wrote:
Mary's sense of humor is undiminished. That is going to help immeasurably along with you being at her side. I'll keep you both in my prayers. Wes |
#21
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Update on Mary
Don Foreman wrote: I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. It's rare, 8 people per million rare. Nobody knows more about it than Mayo. It is a very difficult disease to treat because it has many dimensions and manifestations, and interactions with other issues like cardiac, gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, sudden death by heart failure is more probable than for a person without such damage. We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. It's a bad idea to **** my Mary off, but she does appreciate a good joke. We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. An initial chemotherapy regimen has been defined, which Mary will begin immedately. Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs edema, vs side effects from the chemo. Mary's sense of humor is undiminished. The cardiologist of late appointment today, upon first encounter with Mary, noted discoloration of her nose. What up with that? I paraphrase, the cardiologist was Indian, not Afro. Anyway, Mar noted that a fellow patient in an aside in the waiting room said "I sure hope you're having a better day than I am." The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself (the self-centered asshole!) I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. Mary had cried a bit for him so her nose was red. Why do I love her so? We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. Both of you are in my prayers, Don. -- Politicians should only get paid if the budget is balanced, and there is enough left over to pay them. |
#22
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Update on Mary
toolbreaker wrote: Cancer is an obscenity, I am sorry. It took one of my parents, and almost got the other. -- Politicians should only get paid if the budget is balanced, and there is enough left over to pay them. |
#23
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Update on Mary
"Don Foreman" I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Sorry to hear. :(( phil |
#24
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Update on Mary
And the rest of the prayers. Now, is a good time to rediscover the
religion you either enjoy, or left behind. Best wishes. I hope this works out well for you (in God's eyes). Often God's will is not our will. You may find out much later, why something happened, and realize much later, that it was for good. -- Christopher A. Young Learn more about Jesus www.lds.org .. "Denis G." wrote in message ... Remember the Serenity Prayer. |
#25
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Update on Mary
Don Foreman wrote in
: I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. Past posts suggest that Mary is a tough old bird. Yesterday's incurable is today's tricky bit of modern medicine. I have a buddy that had stage 4 kidney cancer who is now pretty much fully cured. if he'd come down with it two years earlier, he'd be 6 feet under. Hang tough, both of you, and good luck. Doug White |
#26
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Update on Mary
There are very few places in the US that are the equal of Mayo for
overall knowledge and services. RWL |
#27
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Update on Mary
On Thu, 4 Nov 2010 07:50:57 -0700 (PDT), "Denis G."
wrote: On Nov 4, 1:29*am, Don Foreman wrote: I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. * We now have a course of action and treatment. * Diagnosis is 99% sure that Mary's disease is primary *light-chain amyloidosis involving her heart and gut. *The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. * This is an incurable disease, a form of cancer. *It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. * It's *rare, *8 people per million rare. * Nobody knows more about it than Mayo. *It is a very difficult disease to treat because it has many dimensions and manifestations, *and interactions with other issues like cardiac, *gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, *sudden death by heart failure *is more probable than for a person without such damage. * We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. *We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. *It's a bad idea to **** my Mary off, but she does appreciate a good joke. * We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. * An initial chemotherapy regimen has been defined, which Mary will begin immedately. * Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs *edema, vs side effects from the chemo. * Mary's sense of humor is undiminished. * The cardiologist of late appointment today, *upon first encounter with Mary, noted discoloration of her nose. *What *up with that? *I paraphrase, the cardiologist was Indian, not Afro. * Anyway, *Mar noted that a fellow patient in an aside in the waiting room said *"I sure hope you're having a better day than I am." * *The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself *(the self-centered asshole!) *I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. *Mary had cried a bit for him so her nose was red. * Why do I love her so? * We noted this evening that Rochester is 90 minutes bed-to-bed. *That's an easy commute. *We'll probably be doing that with some frequency. * Remember the Serenity Prayer. Serenity Prayer for the Stressed (Blueyes424) Grant me the serenity to accept the things I cannot change, the courage to change the things I cannot accept, and the wisdom to hide the bodies of those people I had to kill today because they ****ed me off. And also, help me to be careful of the toes I step on today, because they may be connected to the ass I have to kiss tomorrow. Help me to always give 100% at work: 12% on Monday, 23% on Tuesday, 40% on Wednesday, 20% on Thursday, and 5% on Friday. And help me to remember when I am having a REALLY bad day, and it seems that people are trying to **** me off, that it takes 42 muscles to frown and only 4 to extend my middle finger and tell them to bite me. Amen -- Experience is a good teacher, but she send in terrific bills. -- Minna Thomas Antrim |
#28
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Update on Mary
Wow! I knew I had a few friends here, but wow. Thanks for all the
good thoughts and wishes. I didn't mean to imply gloom and doom. The disease is incurable and can have eventually fatal effect on vital organs, but we really don't have a prognosis yet and all indications are that it's early stages. We're both expecting that she will get better with a treatment protocol now starting, devised by the small team on her case at Mayo to optimize quality of life by managing effects of the disease while minimizing or arresting its progress as much as possible. We think that's exactly the right focus, and we're optimistic for the time being. We know we won't live forever. We've always said we'd like to check out same day with a nickel left, both grinning and flipping the bird at the grim reaper. We think there may well be a few more good years for us. My ex-wife and my high school sweetheart that I was going to marry and live happily ever after with (but didn't) died within a day of each other in autumn of 2007, both of aggressive cancers. Spookey. I was circling the drain in May of '08 but was saved by a good surgeon and a bit of attitude. Gettin' old is not for sissies. I don't fear death, and I don't think Mary does. We're both experienced with death of others and grief for them. We do what we can to avoid it and forestall it for ourselves, but we accept that it's inevitable. Best we can do is enjoy our lives and each other for as long as we last until our chits expire. Quality life is job 1 every day. |
#29
Posted to rec.crafts.metalworking
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Update on Mary
"Steve B" wrote in message ... "Don Foreman" wrote in message ... I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. It's rare, 8 people per million rare. Nobody knows more about it than Mayo. It is a very difficult disease to treat because it has many dimensions and manifestations, and interactions with other issues like cardiac, gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, sudden death by heart failure is more probable than for a person without such damage. We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. It's a bad idea to **** my Mary off, but she does appreciate a good joke. We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. An initial chemotherapy regimen has been defined, which Mary will begin immedately. Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs edema, vs side effects from the chemo. Mary's sense of humor is undiminished. The cardiologist of late appointment today, upon first encounter with Mary, noted discoloration of her nose. What up with that? I paraphrase, the cardiologist was Indian, not Afro. Anyway, Mar noted that a fellow patient in an aside in the waiting room said "I sure hope you're having a better day than I am." The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself (the self-centered asshole!) I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. Mary had cried a bit for him so her nose was red. Why do I love her so? We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. Don, you've spent enough days under the bus to know that it's the days you DON'T spend under the bus that make all the difference. And even on the bad days, there's tenderness and love. My best to you and Mary. It is refreshing to see two people today who love each other as much as you two do. Steve Heart surgery pending? Read up and prepare. Learn how to care for a friend. http://cabgbypasssurgery.com Very well said Steve. |
#30
Posted to rec.crafts.metalworking
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Update on Mary
On Nov 5, 12:41*am, Larry Jaques
wrote: On Thu, 4 Nov 2010 07:50:57 -0700 (PDT), "Denis G." wrote: On Nov 4, 1:29*am, Don Foreman wrote: I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. * We now have a course of action and treatment. * Diagnosis is 99% sure that Mary's disease is primary *light-chain amyloidosis involving her heart and gut. *The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. * This is an incurable disease, a form of cancer. *It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. * It's *rare, *8 people per million rare. * Nobody knows more about it than Mayo. *It is a very difficult disease to treat because it has many dimensions and manifestations, *and interactions with other issues like cardiac, *gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, *sudden death by heart failure *is more probable than for a person without such damage. * We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. *We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. *It's a bad idea to **** my Mary off, but she does appreciate a good joke. * We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. * An initial chemotherapy regimen has been defined, which Mary will begin immedately. * Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs *edema, vs side effects from the chemo. * Mary's sense of humor is undiminished. * The cardiologist of late appointment today, *upon first encounter with Mary, noted discoloration of her nose. *What *up with that? *I paraphrase, the cardiologist was Indian, not Afro. * Anyway, *Mar noted that a fellow patient in an aside in the waiting room said *"I sure hope you're having a better day than I am." * *The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself *(the self-centered asshole!) *I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. *Mary had cried a bit for him so her nose was red. * Why do I love her so? * We noted this evening that Rochester is 90 minutes bed-to-bed. *That's an easy commute. *We'll probably be doing that with some frequency. * Remember the Serenity Prayer. Serenity Prayer for the Stressed (Blueyes424) Grant me the serenity to accept the things I cannot change, the courage to change the things I cannot accept, and the wisdom to hide the bodies of those people I had to kill today because they ****ed me off. * And also, help me to be careful of the toes I step on today, because they may be connected to the ass I have to kiss tomorrow. * Help me to always give 100% at work: 12% on Monday, 23% on Tuesday, 40% on Wednesday, 20% on Thursday, and 5% on Friday. * And help me to remember when I am having a REALLY bad day, and it seems that people are trying to **** me off, that it takes 42 muscles to frown and only 4 to extend my middle finger and tell them to bite me. Amen -- Experience is a good teacher, but she send in terrific bills. * * * * * * * * * * * * * * * * * * * -- Minna Thomas Antrim- Hide quoted text - - Show quoted text - I hadn't seen that version. It must be from one of those funny spin- off denominations. |
#31
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Update on Mary
Hang in there. Just keep hangin' in there. Our thoughts are with
you. -- "Steamboat Ed" Haas : Zippy sez 'Cast your votes Hacking the Trailing Edge! : for vindictive jerks!' www.nmpproducts.com ---Decks a-wash in a sea of words--- |
#32
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Update on Mary
On 11/04/2010 10:42 PM, Don Foreman wrote:
Wow! I knew I had a few friends here, but wow. Thanks for all the good thoughts and wishes. I didn't mean to imply gloom and doom. The disease is incurable and can have eventually fatal effect on vital organs, Oh -- like that universal disease called 'life', then. but we really don't have a prognosis yet and all indications are that it's early stages. (Not to make light of your predicament -- I'm still wishing you the best of luck on this) -- Tim Wescott Wescott Design Services http://www.wescottdesign.com Do you need to implement control loops in software? "Applied Control Theory for Embedded Systems" was written for you. See details at http://www.wescottdesign.com/actfes/actfes.html |
#33
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Update on Mary
On Fri, 05 Nov 2010 11:51:53 -0700, Tim Wescott
wrote: On 11/04/2010 10:42 PM, Don Foreman wrote: Wow! I knew I had a few friends here, but wow. Thanks for all the good thoughts and wishes. I didn't mean to imply gloom and doom. The disease is incurable and can have eventually fatal effect on vital organs, Oh -- like that universal disease called 'life', then. Yup. |
#34
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Update on Mary
On Fri, 05 Nov 2010 00:42:43 -0500, Don Foreman
wrote: Wow! I knew I had a few friends here, but wow. Thanks for all the good thoughts and wishes. BIG SNIP Hey Don and Mary, Well, you both just remember that all of us "out here", while we're either pushing or pulling at any given moment, for sure that means we're beside you. Brian Lawson |
#35
Posted to rec.crafts.metalworking
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Update on Mary
On Thu, 04 Nov 2010 01:29:33 -0500, Don Foreman
wrote: I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. It's rare, 8 people per million rare. Nobody knows more about it than Mayo. It is a very difficult disease to treat because it has many dimensions and manifestations, and interactions with other issues like cardiac, gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, sudden death by heart failure is more probable than for a person without such damage. We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. It's a bad idea to **** my Mary off, but she does appreciate a good joke. We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. An initial chemotherapy regimen has been defined, which Mary will begin immedately. Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs edema, vs side effects from the chemo. Mary's sense of humor is undiminished. The cardiologist of late appointment today, upon first encounter with Mary, noted discoloration of her nose. What up with that? I paraphrase, the cardiologist was Indian, not Afro. Anyway, Mar noted that a fellow patient in an aside in the waiting room said "I sure hope you're having a better day than I am." The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself (the self-centered asshole!) I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. Mary had cried a bit for him so her nose was red. Why do I love her so? We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. Sorry to hear about Mary, Don. Our hearts, thoughts and prayers are with you _both_. Bob rgentry at oz dot net |
#36
Posted to rec.crafts.metalworking
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Update on Mary
On 2010-11-04, Don Foreman wrote:
I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. Ouch! What does the 1% doubt cover? Something possibly better? [ ... ] Because there is clearly cardiac involvement and damage, sudden death by heart failure is more probable than for a person without such damage. We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. That I can certainly understand and sympathize with. Does "incurable" also eliminate a possibility of stabilizing it at the current stage, if not causing remission? [ ... ] Mary's sense of humor is undiminished. That is good! A friend at work had lukemia, and was posting regular updates on his status and treatment -- including significant technical details. That was his way of dealing with it. Best of luck, DoN. -- Remove oil spill source from e-mail Email: | Voice (all times): (703) 938-4564 (too) near Washington D.C. | http://www.d-and-d.com/dnichols/DoN.html --- Black Holes are where God is dividing by zero --- |
#37
Posted to rec.crafts.metalworking
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Update on Mary
On 11/3/2010 11:29 PM, Don Foreman wrote:
I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. It's rare, 8 people per million rare. Nobody knows more about it than Mayo. It is a very difficult disease to treat because it has many dimensions and manifestations, and interactions with other issues like cardiac, gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, sudden death by heart failure is more probable than for a person without such damage. We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. It's a bad idea to **** my Mary off, but she does appreciate a good joke. We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. An initial chemotherapy regimen has been defined, which Mary will begin immedately. Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs edema, vs side effects from the chemo. Mary's sense of humor is undiminished. The cardiologist of late appointment today, upon first encounter with Mary, noted discoloration of her nose. What up with that? I paraphrase, the cardiologist was Indian, not Afro. Anyway, Mar noted that a fellow patient in an aside in the waiting room said "I sure hope you're having a better day than I am." The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself (the self-centered asshole!) I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. Mary had cried a bit for him so her nose was red. Why do I love her so? We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. Hey, you never know how these things will turn out. I know a guy, in his early fifties that had cancer. It was bad, real bad. No one really knew how to even treat it. He went to all kinds of doctors and they just didn't know what to do. Eventually he went to a specialist in Spokane, Wa. They treated him in a way I've never heard of before. The doctors told him that his internal organs were all covered with cancer. The way they handled his case was to operate on him and remove all his internal organs and physically scrape away all the cancer and then put them back in. When I heard this I figured he was history. That was about a month ago and he's still alive. I have no idea what will happen but he's not dead yet. So keep that in mind. You just don't know how medical things are going to turn out. There is still a part of medicine that is an art and a part that is just plain luck. I guess all you can do is get the best doctors you can and hope for the best. Because you never really know how things are going to play out. So I wish you luck. Hawke |
#38
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Update on Mary
On 6 Nov 2010 02:46:53 GMT, "DoN. Nichols"
wrote: On 2010-11-04, Don Foreman wrote: I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. Ouch! What does the 1% doubt cover? Something possibly better? Not really. It concerns the detail of which particular variant of the disease. [ ... ] Because there is clearly cardiac involvement and damage, sudden death by heart failure is more probable than for a person without such damage. We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. That I can certainly understand and sympathize with. Does "incurable" also eliminate a possibility of stabilizing it at the current stage, if not causing remission? [ ... ] No. We're hopeful that chemotherapy will do that. |
#39
Posted to rec.crafts.metalworking
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Update on Mary
Don,
Best wishes and good luck from me as well. Ken On Thu, 04 Nov 2010 01:29:33 -0500, Don Foreman wrote: I have friends here that care, other readers please ignore. We were at Mayo Monday and Wednesday. We now have a course of action and treatment. Diagnosis is 99% sure that Mary's disease is primary light-chain amyloidosis involving her heart and gut. The 1% doubt that will be resolved with lab results not yet available concerns the particular form of the disease but it's really a matter of i-dotting and t-crossing confirmation of other diagnostic results. This is an incurable disease, a form of cancer. It's akin to leukemia in that it involves white blood cells, different in that it involves different white cells. It's rare, 8 people per million rare. Nobody knows more about it than Mayo. It is a very difficult disease to treat because it has many dimensions and manifestations, and interactions with other issues like cardiac, gastrointestinal and all other organs though Mary's issues at present are cardiac and GI. Because there is clearly cardiac involvement and damage, sudden death by heart failure is more probable than for a person without such damage. We agree that sudden death by heart failure or whatever purely beats the hell out of a lingering death fraught with pain. Neither of us wants to survive the other. We've been teammates since forever. We each and both are a bit selfish in not wanting to be a grieving survivor, and we share a sense of humor about that. It's a bad idea to **** my Mary off, but she does appreciate a good joke. We think we have top-notch professionals in hemotology, oncology and cardiology on Mary's team. An initial chemotherapy regimen has been defined, which Mary will begin immedately. Meanwhile, the cardiologists will try to manage the conflicting issues of low blood pressure (hence seriously diminished physical capacity) vs edema, vs side effects from the chemo. Mary's sense of humor is undiminished. The cardiologist of late appointment today, upon first encounter with Mary, noted discoloration of her nose. What up with that? I paraphrase, the cardiologist was Indian, not Afro. Anyway, Mar noted that a fellow patient in an aside in the waiting room said "I sure hope you're having a better day than I am." The guy was 79 and we think that he received some very bad news about either himself or his wife but probably himself (the self-centered asshole!) I'd noticed the despair in this man when he plopped into a chair in the waiting area but I didn't observe the interaction between him and Mary. Mary had cried a bit for him so her nose was red. Why do I love her so? We noted this evening that Rochester is 90 minutes bed-to-bed. That's an easy commute. We'll probably be doing that with some frequency. |
#40
Posted to rec.crafts.metalworking
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Update on Mary
Myeloma sucks, that said it can be controlled with treatment in many
cases. The drug bortezomib (Velcade) is working wonders, as are multiple combinations of chemotherapy agents -revlimid, velcade, melphalan, decadron, etc. Google up the International Myeloma Foundation and read their pages or request a free information pack. Don't freak out on older statistics of prognosis/mortality as the numbers have not caught up with new treatments. |
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