"Steve B" wrote in message
...

"Don Foreman" wrote in message
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I have friends here that care, other readers please ignore.

We were at Mayo Monday and Wednesday.

We now have a course of action and treatment.

Diagnosis is 99% sure that Mary's disease is primary light-chain
amyloidosis involving her heart and gut. The 1% doubt that will be
resolved with lab results not yet available concerns the particular
form of the disease but it's really a matter of i-dotting and
t-crossing confirmation of other diagnostic results.

This is an incurable disease, a form of cancer. It's akin to leukemia
in that it involves white blood cells, different in that it involves
different white cells.

It's rare, 8 people per million rare. Nobody knows more about it
than Mayo. It is a very difficult disease to treat because it has
many dimensions and manifestations, and interactions with other
issues like cardiac, gastrointestinal and all other organs though
Mary's issues at present are cardiac and GI.

Because there is clearly cardiac involvement and damage, sudden death
by heart failure is more probable than for a person without such
damage. We agree that sudden death by heart failure or whatever
purely beats the hell out of a lingering death fraught with pain.
Neither of us wants to survive the other. We've been teammates since
forever. We each and both are a bit selfish in not wanting to be a
grieving survivor, and we share a sense of humor about that. It's a
bad idea to **** my Mary off, but she does appreciate a good joke.

We think we have top-notch professionals in hemotology, oncology and
cardiology on Mary's team.

An initial chemotherapy regimen has been defined, which Mary will
begin immedately. Meanwhile, the cardiologists will try to manage
the conflicting issues of low blood pressure (hence seriously
diminished physical capacity) vs edema, vs side effects from the
chemo.

Mary's sense of humor is undiminished.

The cardiologist of late appointment today, upon first encounter with
Mary, noted discoloration of her nose. What up with that? I
paraphrase, the cardiologist was Indian, not Afro. Anyway, Mar
noted that a fellow patient in an aside in the waiting room said "I
sure hope you're having a better day than I am." The guy was 79 and
we think that he received some very bad news about either himself or
his wife but probably himself (the self-centered asshole!) I'd
noticed the despair in this man when he plopped into a chair in the
waiting area but I didn't observe the interaction between him and
Mary. Mary had cried a bit for him so her nose was red.

Why do I love her so?

We noted this evening that Rochester is 90 minutes bed-to-bed. That's
an easy commute. We'll probably be doing that with some frequency.

Don, you've spent enough days under the bus to know that it's the days you
DON'T spend under the bus that make all the difference. And even on the
bad days, there's tenderness and love. My best to you and Mary. It is
refreshing to see two people today who love each other as much as you two
do.

Steve

Heart surgery pending?
Read up and prepare.
Learn how to care for a friend.
http://cabgbypasssurgery.com



Very well said Steve.