"Fitch R. Williams" wrote:


So I'll stand by my statement - you have a medical problem, you become
an expert on it.

That's exxactly what Andy Grove of Intel did, when he was diagnosed with
prostate cancer.

--
Abrasha
http://www.abrasha.com

You are absolutely right Bill. Now that I'm almost 55 and trying to track
down (via test after test) the source of an irritating chest pain I'm
tending to pay more attention to topics of medical interest, especially as
they relate to my own symptoms and conditions. Even though I don't yet have
iron overload I am concerned about it after the discussion on the Celtic
internet sites back in 1998. Thanks for bringing this subject to our
attention, hopefully more of us will get tested for it.

Terry

"Bill Darby" wrote in message
...
Thanks Terry

That's an interesting link with lots of good background. It's kind of
funny
how some otherwise very dull subjects, can suddenly become very very
interesting. (^:

Terry Ogletree wrote:

You are absolutely right Bill. Now that I'm almost 55

Ok Terry I am almost 65 so I'll act as your trail blazer. (I wonder who is the
hi mileage fleet leader in the group?) If I find any potholes or crevasses along
the way I'll just holler and you can steer clear! (^:

Seriously that was damned good info and I have given a heads up to my brothers
and kids. Can you imagine 1 in 200 have the double mutation, so that's more then
1.5 million just in the US of A.

Cheers Terry
Bill

I particularly like the one line naming the disease:
" the "British Gene", the "Celtic Curse" or the "Irish Illness" (^:


and trying to track
down (via test after test) the source of an irritating chest pain I'm
tending to pay more attention to topics of medical interest, especially as
they relate to my own symptoms and conditions. Even though I don't yet have
iron overload I am concerned about it after the discussion on the Celtic
internet sites back in 1998. Thanks for bringing this subject to our
attention, hopefully more of us will get tested for it.

Terry

"Bill Darby" wrote in message
...
Thanks Terry

That's an interesting link with lots of good background. It's kind of
funny
how some otherwise very dull subjects, can suddenly become very very
interesting. (^:

"Bill" wrote in message
...
Ok Terry I am almost 65 so I'll act as your trail blazer. (I wonder who is
the
hi mileage fleet leader in the group?) If I find any potholes or crevasses
along
the way I'll just holler and you can steer clear! (^:

Bill, I didn't realize you were so ancient. We youngsters really
appreciate the heads up from you older guys (Fitch, you listening?).

Seriously that was damned good info and I have given a heads up to my
brothers
and kids.

I'm glad you found the site useful.

Can you imagine 1 in 200 have the double mutation, so that's more then
1.5 million just in the US of A.

That's what so scary about this thing. My family is watching this real
closely.

I particularly like the one line naming the disease:
" the "British Gene", the "Celtic Curse" or the "Irish Illness" (^:

Covers it pretty well.

My family is of Scottish descent. One of the rituals at pig/cow/goat
slaughtering time was that the men doing the slaughtering would slit the
throat of the animal to be slaughtered and then fill a cup with the fresh
warm blood flowing from the animal. They would toast the animal, toast the
spirits of the harvest and then drink the blood. This ritual was brought
over from Scotland (via Ireland - we're Scots-Irish) by my family and
practiced through the generations up through my paternal grandfather. My
mother said that my father did not practice this ritual but knowing my
grandfather/father relationship, I'm not so sure about that. They also used
to cook animal blood in with their oatmeal (blood pudding?) as a food
stretcher I was told. I've often wondered if this (and other pagan
practices) contributed to the iron overload genetic make up of some of those
from Celtic lines.

Food for thought.

Terry

"Bill" wrote in message
...


Terry Ogletree wrote:

You are absolutely right Bill. Now that I'm almost 55

Ok Terry I am almost 65 so I'll act as your trail blazer. (I wonder who is
the
hi mileage fleet leader in the group?) If I find any potholes or crevasses
along
the way I'll just holler and you can steer clear! (^:

Seriously that was damned good info and I have given a heads up to my
brothers
and kids. Can you imagine 1 in 200 have the double mutation, so that's
more then
1.5 million just in the US of A.

Cheers Terry
Bill

I particularly like the one line naming the disease:
" the "British Gene", the "Celtic Curse" or the "Irish Illness" (^:


and trying to track
down (via test after test) the source of an irritating chest pain I'm
tending to pay more attention to topics of medical interest, especially
as
they relate to my own symptoms and conditions. Even though I don't yet
have
iron overload I am concerned about it after the discussion on the Celtic
internet sites back in 1998. Thanks for bringing this subject to our
attention, hopefully more of us will get tested for it.

Terry

"Bill Darby" wrote in message
...
Thanks Terry

That's an interesting link with lots of good background. It's
kind of
funny
how some otherwise very dull subjects, can suddenly become very very
interesting. (^:

On Mon, 15 Dec 2003 02:23:20 GMT, "Terry Ogletree" wrote:
My family is of Scottish descent. One of the rituals at pig/cow/goat
slaughtering time was that the men doing the slaughtering would slit the
throat of the animal to be slaughtered and then fill a cup with the fresh
warm blood flowing from the animal. They would toast the animal, toast the
spirits of the harvest and then drink the blood. This ritual was brought
over from Scotland (via Ireland - we're Scots-Irish) by my family and
practiced through the generations up through my paternal grandfather. My
mother said that my father did not practice this ritual but knowing my
grandfather/father relationship, I'm not so sure about that. They also used
to cook animal blood in with their oatmeal (blood pudding?) as a food
stretcher I was told. I've often wondered if this (and other pagan
practices) contributed to the iron overload genetic make up of some of those
from Celtic lines.

The geneticists are saying that it was a diet *low in iron* which caused
this mutation to persist. In other words, it was a pro-survival trait for
people who weren't getting much iron in their diets. Today, in America,
where we get far too much iron in our diets, it has become a problem
for people who have inherited this trait.

Gary

Hi Bill,

October 2002, I had an MRI (that turned up a brain tumor... but that's
another story) that found a discoloration in my brain. I'm 38 years
old. My ankles had been hurting badly for 10 years. My liver numbers
were wacked as well. Doctors wrote off the liver numbers as a result
from taking an anti-inflamitory drug called VIOXX for my ankles.
Anyway, after the MRI, a doctor followed through and found that I have
hemochromatosis as well. This was June 2003. My ferritin level was
5,100. Anyway, I've been give 1 1/2 pints a week since then, and have
seen my ferritin level drop to 1,700. My doctor wants it down to 4.
The other good news is that my liver numbers have improved as well,
indicating it will probably recover. Your ferritin level seems to
indicate it was found pretty early.... that's good. BTW, my ankles
have progressively gotten better, and I'm not nearly as tired as I
used to be. Also, iron penetrates the brain blood barrier.... which
may fit in with the tumor. Take care of yourself,

John Adkins

My God John I am so glad to hear all your good news. As far as the
tumour goes,
at least they can now detect things like that and make sound decisions
as to
what to do. Glad to hear that the blood letting can rip those ferritin
levels down
so quickly. You are right to be concerned about your liver and it is
exceptional
news. It's the weak link in this thing and good numbers mean everything
so far
as it's concerned. I do wish you well and please keep me posted.

So far as my case goes I ordered a second blood test and the second
reading was a lot lower (825) but as I mentioned to a friend it's a bit
like owning
two watches,,, you never know which one is right (if either).

In any case our great medical system has delayed my letting blood
until after I see the
specialist on the 16 of this month. (not to pleased about doing nothing
but watch
paint dry) I am a little concerned over my liver as I am 65 this year
and I spent a total of 40 years in the service and the social life is
not kind to any liver (never mind high Iron levels) (O:

Well it sounds like you have the iron works under control so that leaves
the tumour. It puts me in mind of what Michael Fox (with Parkinson's)
said this morning on TV. Something like "Well, it's not to bad, and I
guess everybody's got their own bag of hammers they have to carry
around."

How true!

Take good care John!!!!

Bill D

John wrote:
"John" wrote in message
om...
Hi Bill,

October 2002, I had an MRI (that turned up a brain tumor... but that's
another story) that found a discoloration in my brain. I'm 38 years
old. My ankles had been hurting badly for 10 years. My liver numbers
were wacked as well. Doctors wrote off the liver numbers as a result
from taking an anti-inflamitory drug called VIOXX for my ankles.
Anyway, after the MRI, a doctor followed through and found that I have
hemochromatosis as well. This was June 2003. My ferritin level was
5,100. Anyway, I've been give 1 1/2 pints a week since then, and have
seen my ferritin level drop to 1,700. My doctor wants it down to 4.
The other good news is that my liver numbers have improved as well,
indicating it will probably recover. Your ferritin level seems to
indicate it was found pretty early.... that's good. BTW, my ankles
have progressively gotten better, and I'm not nearly as tired as I
used to be. Also, iron penetrates the brain blood barrier.... which
may fit in with the tumor. Take care of yourself,

John Adkins

On 11 Jan 2004 10:24:15 -0800, (John) wrote:

Hi Bill,

October 2002, I had an MRI (that turned up a brain tumor... but that's
another story) that found a discoloration in my brain. I'm 38 years
old. My ankles had been hurting badly for 10 years. My liver numbers
were wacked as well. Doctors wrote off the liver numbers as a result
from taking an anti-inflamitory drug called VIOXX for my ankles.
Anyway, after the MRI, a doctor followed through and found that I have
hemochromatosis as well. This was June 2003. My ferritin level was
5,100. Anyway, I've been give 1 1/2 pints a week since then, and have
seen my ferritin level drop to 1,700. My doctor wants it down to 4.
The other good news is that my liver numbers have improved as well,
indicating it will probably recover. Your ferritin level seems to
indicate it was found pretty early.... that's good. BTW, my ankles
have progressively gotten better, and I'm not nearly as tired as I
used to be. Also, iron penetrates the brain blood barrier.... which
may fit in with the tumor. Take care of yourself,

John Adkins

Celtic ancestry given your last name?

Gunner

"Gun Control, the theory that a 110lb grandmother should
fist fight a 250lb 19yr old criminal"

First, to gunner... I believe we have very similar political views.

But I need to stay on topic here. Thanks for the response Bill.
Every Wednesday I get a blood test to make sure it's cool to pull all
of the blood out on Thursday. You mentioned the inconsistant readings
between your two ferritin readings. Geez, I've had the same thing.
It must have to do with who took the test... LOL. Mine has been a
REAL sawtooth.
For my mother's benefit, I've been keeping a little website going that
shows the progress. If you'd like to check out how much it
fluctuates, feel free to take a look...
http://www.kanuna.com/progress/Ferritin.htm