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Posts: 129
Default Hi all again

Sorry i havent been on in a while but tbh I have had a bit of a time with it
lately.

While sanding the staircase 3 weeks ago I had a massive pain in my lungs and
collapsed. I was rushed to A&E where they found PE's (Pulmonary Emboli)
blood clots on my lungs which are very dangerous. They said I had multiple
on both lungs and had got them for a unknown reason. They did more tests and
found after a VQ and CT scan I have cancer of my Lymphatic System, Hodgkins
Lymphoma. I am at stage 3 out of 4 at present and may be diagnosed stage
four next week when my bone marrow tests are concluded. Its about as bad as
it gets with HL. And to top it all off I have a tumor on my heart 7"x5". (
YES ! inches) Not even my Bosch multitool is man enough to remove that one.

Joking aside I just wanted to let you know where I am up to and for the lack
of posts. I have nearly finished the house with just the fencing outside to
do and the hallway and kitchen to decorate which have obviously had to go on
the back boiler for the time being. I may not be here to finish it all but
wanted to thank you for all your help and advice ove the past 6 months or
so. Without your help and wisdom I would have got this far and am not living
in a comfortable house nearly completely finished, used the right tools and
materials and it looks fantastic and thats down tothe superb advice I have
received on here and your tireless answering of my endless question.

God bless you all, hopefuly if all goes well I start my Chemo next week and
will be back finishing the house sometime next year where I will be no doubt
bending your ear again, I hope anyway. If you feel this is a cry for
sympathy you dont know me, I genuinly wanted to thank you all as you have
been such a help to me. You often find in this life you get more help off
strangers on the net than family round the corner. So its not a plea for
sympathy, I would rather nobody posted a reply to this and start a thread, I
just wanted to say Thank You all and I hope to be able to speak with you all
very soon

Love to you all Sam


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Posts: 7
Default Hi all again

On Sep 4, 11:21 pm, "Samantha Booth"
wrote:
Sorry i havent been on in a while but tbh I have had a bit of a time with it
lately.

While sanding the staircase 3 weeks ago I had a massive pain in my lungs and
collapsed. I was rushed to A&E where they found PE's (Pulmonary Emboli)
blood clots on my lungs which are very dangerous. They said I had multiple
on both lungs and had got them for a unknown reason. They did more tests and
found after a VQ and CT scan I have cancer of my Lymphatic System, Hodgkins
Lymphoma. I am at stage 3 out of 4 at present and may be diagnosed stage
four next week when my bone marrow tests are concluded. Its about as bad as
it gets with HL. And to top it all off I have a tumor on my heart 7"x5". (
YES ! inches) Not even my Bosch multitool is man enough to remove that one.

Joking aside I just wanted to let you know where I am up to and for the lack
of posts. I have nearly finished the house with just the fencing outside to
do and the hallway and kitchen to decorate which have obviously had to go on
the back boiler for the time being. I may not be here to finish it all but
wanted to thank you for all your help and advice ove the past 6 months or
so. Without your help and wisdom I would have got this far and am not living
in a comfortable house nearly completely finished, used the right tools and
materials and it looks fantastic and thats down tothe superb advice I have
received on here and your tireless answering of my endless question.

God bless you all, hopefuly if all goes well I start my Chemo next week and
will be back finishing the house sometime next year where I will be no doubt
bending your ear again, I hope anyway. If you feel this is a cry for
sympathy you dont know me, I genuinly wanted to thank you all as you have
been such a help to me. You often find in this life you get more help off
strangers on the net than family round the corner. So its not a plea for
sympathy, I would rather nobody posted a reply to this and start a thread, I
just wanted to say Thank You all and I hope to be able to speak with you all
very soon

Love to you all Sam


Hi Sam,

Sorry to hear your news. I had similar bad news in January 2007, after
a lot of chemo, surgery and currently Radio Therapy I am still
fighting, but making progress and hoping to win soon!

There are a lot of fantastic treatments out there, so keep on fighting
- there are different levels of treatment and you may have to go
through a few different ones to get rid of it, but it can be beaten.

Chemo is a bitch, but you have to be strong. There are many drugs to
combat the side effects - don't suffer in silence, tell the nurses and
doctors and they will have something to help - especially if you have
nausea, the anti emetic drugs are great - get them IV and the problem
ļ

All the best
Marc
  #3   Report Post  
Posted to uk.d-i-y
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Posts: 3,212
Default Hi all again


"Samantha Booth" wrote in message
...
Sorry i havent been on in a while but tbh I have had a bit of a time with
it lately.

While sanding the staircase 3 weeks ago I had a massive pain in my lungs
and collapsed. I was rushed to A&E where they found PE's (Pulmonary
Emboli) blood clots on my lungs which are very dangerous. They said I had
multiple on both lungs and had got them for a unknown reason. They did
more tests and found after a VQ and CT scan I have cancer of my Lymphatic
System, Hodgkins Lymphoma. I am at stage 3 out of 4 at present and may be
diagnosed stage four next week when my bone marrow tests are concluded.
Its about as bad as it gets with HL. And to top it all off I have a tumor
on my heart 7"x5". ( YES ! inches) Not even my Bosch multitool is man
enough to remove that one.

Joking aside


....

None of that is anything to joke about - and I've never heard of a tumour on
a heart although I've often wondered why.

As Marc said, treatments are no picnic but they are effective and worth
persisting through.

It's going to be a hard time for you - but better than the alternative. Keep
in touch - and take advantage of support groups, both those made up of real
people and those on the internet.

hugs

Mary


  #4   Report Post  
Posted to uk.d-i-y
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Posts: 129
Default Hi all again


"Mary Fisher" wrote in message
t...

"Samantha Booth" wrote in message
...
Sorry i havent been on in a while but tbh I have had a bit of a time with
it lately.

While sanding the staircase 3 weeks ago I had a massive pain in my lungs
and collapsed. I was rushed to A&E where they found PE's (Pulmonary
Emboli) blood clots on my lungs which are very dangerous. They said I had
multiple on both lungs and had got them for a unknown reason. They did
more tests and found after a VQ and CT scan I have cancer of my Lymphatic
System, Hodgkins Lymphoma. I am at stage 3 out of 4 at present and may be
diagnosed stage four next week when my bone marrow tests are concluded.
Its about as bad as it gets with HL. And to top it all off I have a tumor
on my heart 7"x5". ( YES ! inches) Not even my Bosch multitool is man
enough to remove that one.

Joking aside


...

None of that is anything to joke about - and I've never heard of a tumour
on a heart although I've often wondered why.

As Marc said, treatments are no picnic but they are effective and worth
persisting through.

It's going to be a hard time for you - but better than the alternative.
Keep in touch - and take advantage of support groups, both those made up
of real people and those on the internet.

hugs

Mary

The tumor is in my chest encasing the IVC and the Aorta. Its surrounding my
heart and is quite normal apparently. Its called a SubMedia mass. Often with
HL it attaches itself to other organs thats why when at STG3 one must be
quite quick with treatment.
My joke about the Bosch is my sence of humor Mary. If I dont make light of
it I will go downhill and it is my way of coping with it.


  #5   Report Post  
Posted to uk.d-i-y
Rod Rod is offline
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Posts: 2,892
Default Hi all again

I was going to folow your request and not post. But as a thread is
developing...

You have always come back and responded, asked follow-ups and tried to
really understand. That makes posting a response a joy.

Wishing you all the best - hope you'll be Fein by next year. :-)

(Partner thoroughly understood you comment about family and strangers.)

--
Rod

Hypothyroidism is a seriously debilitating condition with an insidious
onset.
Although common it frequently goes undiagnosed.
www.thyromind.info www.thyroiduk.org www.altsupportthyroid.org


  #6   Report Post  
Posted to uk.d-i-y
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Posts: 3,212
Default Hi all again


"Samantha Booth" wrote in message
...

....


The tumor is in my chest encasing the IVC and the Aorta. Its surrounding
my heart and is quite normal apparently. Its called a SubMedia mass.


Ah, I see. Yes, I have heard of that!

Often with HL it attaches itself to other organs thats why when at STG3
one must be quite quick with treatment.


Yes ...

My joke about the Bosch is my sence of humor Mary. If I dont make light of
it I will go downhill and it is my way of coping with it.


I realised that, I think it's the best way to cope, I joked all the time -
still do. When I was diagnosed with a (benighn) brain tumour I wrote
doggerel (Mary had a little lump ... ) but very few people thought it was
funny. You get to know your true friends!

When I was diagnosed with cancer I was astonished at the number of people
who couldn't cope, didn't know what to say to me, even stopped talking to
me. I learned that this isn't at all uncommon and that you have to try and
understand them - but that certainly shouldn't stop you talking about it.

Spouse couldn't understand it and was hurt when it happened to him when his
prostate cancer was diagnosed but we've learned that some people are
grateful for knowing our experiences and have taken steps to seek advice
when they've had similar symptoms.

So don't stop telling people and for goodness' sake don't stop laughing.

Some on this ng might well think that this is ot, if you want to mail me my
address is working,

more hugs

Mary




  #7   Report Post  
Posted to uk.d-i-y
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Posts: 129
Default Hi all again


"Mary Fisher" wrote in message
t...

"Samantha Booth" wrote in message
...

...


The tumor is in my chest encasing the IVC and the Aorta. Its surrounding
my heart and is quite normal apparently. Its called a SubMedia mass.


Ah, I see. Yes, I have heard of that!

Often with HL it attaches itself to other organs thats why when at STG3
one must be quite quick with treatment.


Yes ...

My joke about the Bosch is my sence of humor Mary. If I dont make light
of it I will go downhill and it is my way of coping with it.


I realised that, I think it's the best way to cope, I joked all the time -
still do. When I was diagnosed with a (benighn) brain tumour I wrote
doggerel (Mary had a little lump ... ) but very few people thought it was
funny. You get to know your true friends!

When I was diagnosed with cancer I was astonished at the number of people
who couldn't cope, didn't know what to say to me, even stopped talking to
me. I learned that this isn't at all uncommon and that you have to try and
understand them - but that certainly shouldn't stop you talking about it.

Spouse couldn't understand it and was hurt when it happened to him when
his prostate cancer was diagnosed but we've learned that some people are
grateful for knowing our experiences and have taken steps to seek advice
when they've had similar symptoms.

So don't stop telling people and for goodness' sake don't stop laughing.

Some on this ng might well think that this is ot, if you want to mail me
my address is working,

more hugs

Mary




Thanks Mary thats put my mind at rest. I thought you were annoyed at me for
joking.
I have had now three weeks to get used to the fact i am riddled with cancer,
head, neck chest, stomach, back and groin, but with little pain apart from
my back and chest. I have cried, sobbed and now come to terms with the fact
i am at rock bottom, if I dont die from it the only way is up as far as I
can see. Do you know, I have feared all my life getting cancer, as a nurse I
used to work in a major surgery ward at our local hospital years ago and saw
patients with cancer daily. It has always been one of my worst fears, now I
have got it the silly thing is I have nothing now to fear and feel quite
peaceful. I know its sounds strange or odd but i cannot seem to explain it
better than this. When in life you face your worse fear and feel like people
are fighting and praying for you i dont have to fear it anymore, the fear of
cancer has gone as I have it, now i have to deal with it and fight like a
Ghurkha. I have four children ageing from 6-11 to fight for and I am not
giving up for anyone. Perhaps it will get the better of me, I expect it may
do talking to the consultant but they aint getting me without a fight. I
appreciate your kindness and dont want to turn this thread into a big OT
thread but thanks to you all for your messages and emails in private. They
are very much appreciated and knowing you are routing for me makes all the
difference.

God bless again and thanks


  #8   Report Post  
Posted to uk.d-i-y
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Posts: 66
Default Hi all again


"Samantha Booth" wrote in message
...
Sorry i havent been on in a while but tbh I have had a bit of a time with
it lately.

While sanding the staircase 3 weeks ago I had a massive pain in my lungs
and collapsed. I was rushed to A&E where they found PE's (Pulmonary
Emboli) blood clots on my lungs which are very dangerous. They said I had
multiple on both lungs and had got them for a unknown reason. They did
more tests and found after a VQ and CT scan I have cancer of my Lymphatic
System, Hodgkins Lymphoma. I am at stage 3 out of 4 at present and may be
diagnosed stage four next week when my bone marrow tests are concluded.
Its about as bad as it gets with HL. And to top it all off I have a tumor
on my heart 7"x5". ( YES ! inches) Not even my Bosch multitool is man
enough to remove that one.

Joking aside I just wanted to let you know where I am up to and for the
lack of posts. I have nearly finished the house with just the fencing
outside to do and the hallway and kitchen to decorate which have obviously
had to go on the back boiler for the time being. I may not be here to
finish it all but wanted to thank you for all your help and advice ove the
past 6 months or so. Without your help and wisdom I would have got this
far and am not living in a comfortable house nearly completely finished,
used the right tools and materials and it looks fantastic and thats down
tothe superb advice I have received on here and your tireless answering of
my endless question.

God bless you all, hopefuly if all goes well I start my Chemo next week
and will be back finishing the house sometime next year where I will be no
doubt bending your ear again, I hope anyway. If you feel this is a cry for
sympathy you dont know me, I genuinly wanted to thank you all as you have
been such a help to me. You often find in this life you get more help off
strangers on the net than family round the corner. So its not a plea for
sympathy, I would rather nobody posted a reply to this and start a thread,
I just wanted to say Thank You all and I hope to be able to speak with you
all very soon

Love to you all Sam


Love to us? no way Sam
lOVE TO YOU SWEETHEART.




Micky. Leeds.


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Posts: 296
Default Hi all again

On 5 Sep, 12:59, "Samantha Booth" wrote:
"Mary Fisher" wrote in message

snip

They
are very much appreciated and knowing you are routing for me makes all the
difference.


Routing?!

Much too crude, you want a dremmel for that sort of surgery!

Seiously Samantha, I hope everything works out for you!

Cheers

Chris
  #10   Report Post  
Posted to uk.d-i-y
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Posts: 3,212
Default Hi all again


"Samantha Booth" wrote in message
...

....

I would rather nobody posted a reply to this and start a thread,

....


I'm sorry, Sam, I really didn't see that part.

Mary




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